Hmmm... How can a day starts wrong? Whenever I am in England, without sounding like a stuck up Malay girl, or try to sound posh, my days are always good. I wake up smiling, I smell the roses in the garden and of course... my boyfriend lives there, so that makes everything looks perfect to my eyes.
For some, a bad day could start with bad traffic, late for work, having arguments with their spouse etc.For me these couple of days had treated me not so well name it the start or the end of it.
Its the people that I have to communicate with! see, despite working for myself at this moment I still have to encounter some silliness from people and this week I don't get the result that I want workwise.I know I should not take things so hard, but without me realizing it I feel so stressed out and alone and my knees are aching and my hair is dropping again.
On another note, I browsed through several Lupus group’s websites last week and I realized that there are plenty more to be done with Malaysian SLE Association beside the regular trip and talks, while friends in some countries are writing bills and memorandum to their parliaments , SLE Malaysia Association still have not updated their website. Talks about drugs, how to get financial support and helps, blood pressure screening, eye test, and talks with experienced rheumatologist are really some of the agendas that would be much better appreciated from a Lupus patient's point of view. I met a lady, she is A Manager at Mc Donalds and her sister died of Lupus many years ago. Her sister played hockey for the country until Lupus striked, the waiting period to be treated by a Rheumatologist is just unbelievable she complained (well, so did I) and that was what she had encountered and frustrated about.I am lucky that I get private medical treatment but It ain't cheap and just imagine for those who just can't afford it? And insurance won't cover this.
I really am hoping that they will be a cure for this autoimmune disease, a pill that can tell my immune - "Hey dude, you gone the wrong way man.., you should protect her and not attack her DUH!"
Because I am feeling freakin tired of eating my pills in the morning, I want to go back to being the old me!
I feel much better after spilling this out ...puking this all to you readers, and writing is therapeutic indeed!, I have to go back to making few more phone calls and perhaps go out and get some ice cream at my nearest Baskin after that...Somehow my grandma always say "put some sweetness in you and you'll find your sadness fade...I am going to make today MY day,I am going to laugh and sing, and no one can ruin today for me.